Thursday, October 16, 2014

That little light at the end of the tunnel...

So I suppose a blog post is long overdue.  I have been in major transition mode.  GOOD transitions.  Absolutely blessed transitions.  The meds I have been on for the past year, all 4 different brands have not been working.  Things are always gonna be hard in life, but I just can't seem to understand why everything seemed to be going wrong... all at once.  A little over a month ago, all hell seemed to be breaking loose.  I had lost control, I was worse than I have ever been.  Panic attacks multiple times a week, passing out all the time, tremors all over my body, major mood swings, and my family walking on eggshells trying to keep me from totally loosing it yet again.  I couldn't handle being at school for more than 15 minutes before the school had to call EMT's because I was having a panic attack.  My mom finally scheduled me to see my doctor thinking that we were going to need to change my medication once again.  About a week before that my counselor had my mom give me a genetic test or something that she sent in to a Lab.  Anyways, a few days before my appointment my mom got a call from my doctor.  She wanted to see me right away.  So she moved the Appt. up to the next morning.  We went in... My doctor started to explain my test results.  She said that when my results came back I tested positive for Pyroluria.  I thought "Oh big deal... this just means I will have to take a few more vitamins."  I had never heard of Pyroluria, but my doctor explained to my mom and I.  She said it is an immune deficiency, causing my body not to produce B6 vitamins and zinc.  She told us that the range for the results was on a 1-9 scale, with 1 being a small deficiency, and 9 being a quite high deficiency.  My results came back a 66.  Talk about off the charts.  Pyroluria, though not commonly known, is often mistaken for psychiatric disorders.  People with this disease have extreme imbalances in their body chemistry, causing dramatic mood swings, panic, anxiety, depression etc.) Patients who have Pyroluria are often misdiagnosed with a psychiatric disorder like Bi-Polar, and Schizophrenia, Clinical depression or various anxiety disorders.  My doctor immediately put me on an extremely high dose of B6 and Zinc, that can cause extreme side effects, and can possibly kill a person who doesn't have this disease.

OK enough of me ranting with a bunch of medical talk.  My point of this entire post, is celebration!  I have been on these supplements and various things for about a month now, and I am certainly not out of the woods yet, BUT I AM PRAISING THE LORD.  I am finally feeling better, and seeing strides of stability in my life, and my family's lives.  I am smiling, dancing, writing, and just being dorky (HA), but thats okay because it means I am feeling happy again.  For me its kind of like learning to ride a bike again.  I am learning how to be happy and confident and bright for the first time in so long.  Prayer has been so so so huge, and I can't thank everyone enough who have been praying for these days to come.  I still have my daily little battles, but overall it feels like a brand new life.  I can finally see that little light at the end of the tunnel, and I am elated to someday live in the light for eternity with my Lord and Savior.  More updates to come soon!

<3 Mads

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